How did it get to this then?

As my best friend has a good old whiff of my underarms declaring they are fresh as daisies, we burst out laughing. I haven’t been able to wash or bathe for a few days and I’ve been lamenting that I must stink now. You see, I have this thing. This official diagnosis. I have fibromyalgia.

This is where all sense ends I’m afraid. I’ve been to the G.P. I’ve been to a rheumatologist, he diagnosed me so I know I have it. But what is it? No-one really knows. I can hear you thinking what do you mean no-one really knows? I know this because that’s exactly what I’ve been thinking too; except with a whole lot more swearing involved.

I’m afraid this may be a self indulgent venture, writing this blog that is. I’m at a stage in my illness where I’m having a ‘flare.’ At present I’ve barely been out of bed for the last three months let alone the house. Not moving hurts like hell let alone trying to make the effort to wash and dress. Part of the condition is ‘fibro fog’ so in this three months it’s been difficult to read, watch a film of do anything that takes much concentration. I could feel myself slowly descend into a depressing slump of cake boss on T.V. and when I actually watched an episode of Long Island medium, I knew that I had to do something before what brain I have left turned to mush.

So here it is, my grand idea of writing a blog. I want to say on this ‘fibromyalgia journey’ but you see; one of the reasons I want to write this is because I’m a bit fed up of researching my condition. Only to find all this sound bite type chat. I’ve  highlighted it already ‘fibro flare’ ‘fibro fog’ ‘fibro journey’ and my biggest bug bear of all – ‘fibro warrior.’ I’m not very sure why all these terms annoy the hell out of me but can you indulge me while I try to figure it out? It’ll be like therapy for me, but cheaper. Kind of one sided group therapy!

Thankfully for you guys reading, my posts will no doubt not be too long because either my concentration will wander off and I’ll forget my point or my fingers will get so painful they will stop working.

I’ll sign off my first post by just saying I hope you stay with me while I try to discover how to best deal with all of this without losing my sense of humour. I’m going to look at a holistic approach of evicting the imposter who has taken up residence in my body. For starters they are four stone heavier than I am! 😉

Author: howdiditgettothis

EDIT EDIT: The original About me seems like a lifetime ago and a different person! EDIT: No longer a wife or stepmonster! On a rollercoaster trying to navigate life as a wife and step monster while dealing with the chronic illness that is fibromyalgia. Coming to terms with the imposter who has taken up residence in my body and trying to navigate the real me back to the surface!

22 thoughts on “How did it get to this then?”

  1. Hi sweetie. I will definitely keep up with your posts and as soon as I finish typing this will be googling your condition. It’s just crap that this is happening to you. I’m thinking of you and rooting for you and I hope starting this blog is part of the way to finding your way back to yourself. Lots of love Lesley x

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  2. I’ll be reading dawneypops! Never even heard of this before and knowing the energetic creature you are, this must be a right breach on your life, so owt i can do to help just let me know. This is a good move though, get it oot love! Folk are listening. X

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  3. I’ve worked in occupational/vocational rehabilitation for many years. So come across multiple conditions including your own… from that perspective I would say don’t stop asking questions! Don’t leave a drs office until you have asked all that you want to know. Don’t be a passenger and fight for information. From my psychology background… and in relation to blogging/writing… I say go for it. If you enjoy it, if it’s cathartic… if it fills in an hour. It’s worth it. Ps and an extra bonus you may also finds hints of triggers or repetitive patterns as time goes on and you read back through your posts. Win-win I say. Good luck! x

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    1. Thanks for this, luckily I have a decent G.P. but local council is very bad with resources. As my friend told me this morning, my full time job just now is looking after me. I enjoy writing and now I’m over the first timer nerves, I think it’ll be really helpful x

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  4. I am 100% sure you will get better very soon. When I struggled with my health in the past no matter how ill I was I always affirmed statements of gratitude for being healthy. I know it sounds a bit weard but I recommend you read the book “Heal your body” by Louise L. Hay. You are an intelligent person and it will help you heal faster. Good luck and hope to read more of your stories:-) Smiles and Hugs from me.

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  5. It’s lovely how your sense of humor comes across even in such a difficult situation. I don’t know about a cure, but doing something that makes us happy always has a good impact in our day, so do continue to write for as much as you can! 🙂 wishing you strength and courage on your journey.

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